constance: (ignore.)
constance ([personal profile] constance) wrote2009-02-13 08:09 pm

postprandial conversation

Sometimes, I want to write about something big and important, but I'm not sure what I want to say, or how to say it or maybe even how I feel about it, and in the meantime it's Big and Important and I feel a little weird not mentioning it because a lot of my time is taken up with it and it seems as though I ought to mention it, especially in a place like this which is all about my preoccupations. And I feel equally weird talking about other more trivial or self-indulgent things with the Big and Important thing hanging over me.

But I guess the time has come to talk about this latest Big, Important thing, because I have a question for you. The thing is this: after several years of increasingly nerve-wracking scares and biopsies and precancer growths, the doctors are warning my mother that breast cancer is more a matter of time than a possibility, and she's decided to get a prophylactic mastectomy to reduce her risk. She's scheduled the surgery for April 1, which is kind of a tasteless cosmic joke, but we're finding it a little funny because we're tasteless that way.

Mom is okay, I think. When the surgery was first recommended a couple of years ago, she was upset and resistant, but the intervening time's changed her perspective, and she seems to be getting ready now without too much trauma, though obviously that could change as the time draws nearer. My dad's being great too. Not so much with the providing a sounding board or a shoulder to cry on, but he is rock-solid, going to every doctor appointment, setting up services and caregivers now so that when the time comes Mom won't have to worry about anything getting done while she's in recovery.

And the rest of us are chipping in where we can, where they'll let us. Which is where the question comes in, because my sister-in-law and I are coordinating to try and get supplies together that she might need, pillows and baby monitors and loose lounge clothes and stuff, and the question is this: if you know anyone who's had a mastectomy, do you have any recommendations about things to buy to make things easier?

[identity profile] gmth.livejournal.com 2009-02-14 02:45 am (UTC)(link)
I don't, but I wanted to throw some support your way and your family's way because that had to be a really tough decision. I hope everything works out okay for you all. *hugs*

[identity profile] tofty.livejournal.com 2009-02-15 12:53 pm (UTC)(link)
Thanks. Yeah, it was a pretty tough decision, but I think (and Mom too, which is more important) that it was the right one. *hugs*

[identity profile] saekokato.livejournal.com 2009-02-14 03:30 am (UTC)(link)
*HUGS* For both you and your mom.

[identity profile] tofty.livejournal.com 2009-02-15 12:54 pm (UTC)(link)
Thanks! :)

[identity profile] violetisblue.livejournal.com 2009-02-14 03:30 am (UTC)(link)
I don't have any advice/experience to offer, unfortunately, just sympathies for your mom and all around.

[identity profile] tofty.livejournal.com 2009-02-15 12:54 pm (UTC)(link)
They're much appreciated, believe me.

[identity profile] xanthophyllippa.livejournal.com 2009-02-14 05:33 am (UTC)(link)
A friend of mine a while ago was confined to bed rest for her pregnancy, and she was asking for things that could help pass the time without requiring company or serious concentration. Books, movies, card games that two people can play... My mother keeps a coloring book and crayons in the house for when she gets sick, and she pulled it out when she had her lumpectomy last fall and was too tired to move around much.

This is a scary thing. I hope you're okay, too.

[identity profile] tofty.livejournal.com 2009-02-15 12:56 pm (UTC)(link)
Oh! This is exactly what I wanted. Thank you so very, very much -- I'm making notes and I'll call my SIL today to hash out details. I love the coloring book and crayons idea -- Dover makes some beautiful coloring books for adults, and I think Mom'll get a kick out of the idea.

[identity profile] xanthophyllippa.livejournal.com 2009-02-14 05:35 am (UTC)(link)
Oh - and a teddy bear or other soft stuffed animal so she has something to hug when she's alone.

[identity profile] tofty.livejournal.com 2009-02-15 01:03 pm (UTC)(link)
I've been meaning to say. I was looking for a book the other day, and came across Calvin Trillin's Tummy Trilogy and realized that I'd never sent it to you because I am a bad person. Are you still interested? Because if you are, you should email me your address again, and I'll get it in the mail ASAP.

[identity profile] xanthophyllippa.livejournal.com 2009-02-15 02:16 pm (UTC)(link)
Sure, I'll take it. No worries. Email to follow.

[identity profile] tofty.livejournal.com 2009-02-15 06:21 pm (UTC)(link)
Got it -- I'll send this week. :*

[identity profile] jossish.livejournal.com 2009-02-14 08:08 am (UTC)(link)
I too have nothing useful, but *hugs*

[identity profile] tofty.livejournal.com 2009-02-15 12:56 pm (UTC)(link)
*hugs* How did your v-day go?

[identity profile] laurelwood.livejournal.com 2009-02-14 01:54 pm (UTC)(link)
I'm so sorry your mom has to go through this. I've thought a lot about what it would feel like to have to face this (breast cancer runs in our family) and I can only just barely grasp at the emotional turmoil such a decision must cause for everyone.

I wish I had some informed recommendations! I do love [livejournal.com profile] xanthophyllippa's idea of the color book and crayons, though. The couple of times I've been really sick, such diversions have been very soothing.

Best wishes to your mom for a speedy, uneventful, pain-free-as-possible procedure, and give her a hug for me.

[identity profile] tofty.livejournal.com 2009-02-15 01:01 pm (UTC)(link)
Things've been pretty roiled up lately, yeah. But anymore, there's so much turmoil and anxiety attached to her six-month exams that this possibility of resolution, no matter how awful in itself, is now the lesser of two evils, you know?

[identity profile] amelia-eve.livejournal.com 2009-02-15 04:28 pm (UTC)(link)
Oh sweetie, this is tough. But at least you all get to plan ahead and not have this as a big, sudden emergency.

Does your mom have an iPod? Loading up an mp3 player with some good playlists could be nice for her. It doesn't take much energy and she can enjoy it lying down.

I actually have some of those nice Dover coloring books that have been looking for a good home. If you email me your address (I know I have it somewhere, but....) I will pop them in the post.

[identity profile] tofty.livejournal.com 2009-02-15 06:25 pm (UTC)(link)
I'm so glad, if glad is the word I want, that she's doing this now and not waiting for a cancer diagnosis; there are so many advantages to doing it pre-diagnosis. And the alternative makes me shudder in horror, so, yeah, maybe glad is the word I want.

An mp3 player, ooh, ooh! She may be getting one anyway -- she was talking about it -- but I can load her up with music and audiobooks, at the very least. Excellent idea!

Oooh, I will mos def email you my address. Thanks for the offer, you. ♥

[identity profile] treehavn.livejournal.com 2009-02-17 02:26 am (UTC)(link)
I'm very sorry to hear this. Hopefully, having had time to consider all the options, your mum - actually your whole family - can appreciate that, hideous as a mastectomy is, it's the better option than breast cancer. Still, totally sucks.

I think you've covered a lot of the bases, and a lot of it is going to be combating boredom. I asked my mum re: her mastectomy, and all she could think of extra was try and make sure everything is below shoulder height, so your mum won't need to reach up for anything. Also, you'll need a detachable shower head so she can wash her hair - or have someone wash her hair - without wetting her upper body, and getting in and out of the bath can be a pain since your upper body strength is compromised. In the long term, the drugs my mum is on affect her joints and make them sore, so that might also be something to consider. Best of luck.

[identity profile] tofty.livejournal.com 2009-02-18 12:01 am (UTC)(link)
She has a step-in shower cubicle with a detachable showerhead, so she's lucky to be covered there. And I'll be sure to warn her about reaching for things! That's something (like so many things) that no one thought about because who has trouble reaching above their heads? We've just taken our family's health as a whole for granted for way too long.

We are all grateful, believe me. I'm glad we're doing this now and not later, when things might be so much worse.

[identity profile] emily-spinach.livejournal.com 2009-02-17 06:26 am (UTC)(link)
I'm so sorry to hear about this, and wish you and your family all the best.

I don't have any experience with this particular medical procedure, but my sister and father have both been in and out of the hospital quite a bit. My father had a crazy Van Gogh poster in his room--and he was on some incredible drugs--and so he enjoyed tripping out to it, and recommends art highly. My sister really appreciated unusual items of food (artichokes, gourmet chocolate with lavender or chili or whatever in it)--anything that's the opposite of the mandated hospital diet. And they both devoured TV series on DVD.

Oh! And maybe DVDs of movies that your mom would have watched and enjoyed as a kid? Comforting--my dad always turns to screwball comedies and the like.

Best of luck!

[identity profile] tofty.livejournal.com 2009-02-18 12:03 am (UTC)(link)
Oh, those are all good ideas! I'll be sure to stock up on tempting foods and DVDs. (I'm not too sure what she liked as a kid, but I think I've got some ideas as far as things she loved that she hasn't seen in many years go.) ♥